Yes, I am going to post a lot about ALS, about Mary’s journey, about my journey. It is a story that needs to be told. It does not mean I am dwelling on anything, or stuck in a particular place. You do not need to worry about me. I am sharing my story this month, openly and frankly, in public posts, in the hopes that it will help to educate people about ALS and how the disease is different for everyone. Yes, some of my posts will be hard to read. Yes, you can share my posts. And if you do not want to read them, I get it. I wish I hadn’t lived them. But I did. Nothing will change that. I promised Mary that when she was gone, I would help everyone else. This is just a part of what that looks like.
ALS Awareness Month 2021
May is ALS Awareness Month. It is also Mental Health Awareness Month. You might think the two don’t go together, but you would be wrong. An ALS diagnosis is a mental health crisis not only Read more…
1 Comment
Jane Williamson · May 26, 2017 at 8:07 am
I will read every word of every one of these posts. I have now read about half of them and need a little break, but I definitely will return. Your writing is clear, direct, impactful, and yet completely filled with love and compassion. As a CALS, I appreciate both the candor and the compassion! We haven’t reached the ventilation stage yet, but it is always on my mind, and your descriptions are really helpful. You are definitely fulfilling your promise to Mary. ?
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