I met Daniel in January of 2012. We were both just coming out of bad marriages. I didn’t know a relationship could be the way ours was. It was perfect. He traveled 6 months out of the year for work and I missed him a ton but I knew that eventually that was going to end. He was diagnosed with ALS in January of 2017. We got married in May 2017. He passed away June 2018. He’ll be the love of my life forever.
Our story started in 2007. It was a second marriage for both of us. We knew we were meant to be together from the get go. Our marriage was amazing. We never fought for the 11 years we were together. Discussions, yes, but fights, no. That was different from what I was used to, with previous relationships. Life was challenging though, navigating finances and a mixed family. Bryan was my rock. He was my calm, my reason, my strength. Bryan had so much pain during our time together, but we thought it was arthritis. Looking back, I wonder if it wasn't ALS all along. It wasn't until May 2018, until he was slurring words that panic set in, with all his other symptoms. May 2018 was full of tests, EMGs, MRIs,etc. Bryan was officially dx with ALS June 14, 2018, he took his last breath Oct. 13, 2018. Bryan was gone in 4 months. The beast took his precious life at the speed and force of a freight train.
I fell head over heals in love for Jim just going into my senior year of high school. He was 2 years older. It took him 1 1/2 years later before he even told me he loved me. Man of honor...would not use those words unless marriage was part of the plan. Married 6/24/81. 3 kids later and a career in law enforcement. He retired after 30 years of protecting other people. Started having swallowing, speech and neck strength issues 1 year later...9 months later Dx 8/16. It totally broke my heart to see him decline. He was more worried about me. He was always like that...put me and others first. He went home in peace 11/24/19. Even though I'm glad he is free of his prison and pain my world is blown apart. I never imagined the pain could be so deep, devastating and relentless. He was my best friend, my soul mate, my strongest supporter, my partner in crime, my lover...My World! He made me a better person...I'm lost...
Met my Bill on January 31, 1983. Our first date followed on February 19,1983 and we married October 19,1984. He was diagnosed in June 2010. We renewed our vows for our anniversary in 2015. He passed June 20, 2017. I will never stop loving or missing him, but in honor of him and his love of life, I am happy again with my life full of animals, a grandchild, etc. #Soulmates
Steven was my amazing chapter 2. I was in an abusive marriage for 8 years & then a solo-Mom for a year. He was so excited to be a Daddy! (He was a widower of 2 years) We met 8/2004 and married 1/2005. Added my boy in 2006 to the clan. ALS DX 7/2014 and he passed 11/2015. Missing him all the time as I go through his things, my things, & our life together so that I can pack and move 14+ hours away and begin again with my love. This is a long time coming. I am so at peace. Steven, I believe, has been visiting to let me know he's on board. Looking forward to a happy future and a good man to help me raise my son to adulthood.
Hold tight and kiss. Do it now, do it a lot. We met when we were in high school, didn't date until a few years later. I knew he was the one, just had to let him figure it out. We got married on May 5th 1984, 3 sons pretty quickly. He wanted to be young with this children. In 2012 we noticed something was wrong it took 2 years to get the diagnosis, we did okay until late 2016. Then the earth cracked open and it was one horrendous loss after another. Walter was heroic in what he did to stay with us. He left on October 14th 2019. And I fell into the hole. "When I say I'm going home. I mean I'm going to where you are."
The first is our early years at our happy place.... The second is the day he died. I find myself when I look at pictures over the years noticing the changes in his facial expressions and smile as his ALS progressed. The damn disease just robs them and us of who they were and how we related to them. I loved his so much, he was my best friend and soul mate, but at the end I was his voice, his caregiver and advocate.... Wouldn’t change my time with him but boy did I wish he didn’t have to go thru the horrid disease...
Met him in 2000, married 2014, diagnosed 2013, passed away 2020. 20 years with the most amazing man ... I miss him so much I can't breathe sometimes. I guess he felt like that all the time...
Billy and I met in 1993 and married in 2002. He passed away in 2016.
Rocky and I met through another guy I was dating. It was a group of us hanging out together and when Rocky and I made eye contact, it was over for me. I broke up with my boyfriend, and later met Rocky in a rock and roll dive club. We exchanged numbers, but he didn’t call me quickly enough so I called him. We had our first date on April 8, 1983. I was 19 and he was 26. We were crazy for each other and always were. Our first kiss was as sweet as our last. He was diagnosed in July of 2017 and died on February 27th, 2019. Our life together was special. We couldn’t have children but it didn’t matter. He was my hero, my conscience, my soul mate, and best friend. I miss him more than I can bear.